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Who is Alex?Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.
Tag Archives: autism
Statement by Karen and Jeremy about misuse of Alex’s picture: Alex’s story, and in particular the picture Jim Carrey used is not about vaccine safety. It is a story of extreme autism and self-injurious behaviors. It is a story about … Continue reading
Today we had Alex driven up to our house for his visit, and to meet his new baby sister. His mood was all over the place, and we had a few really great moments, but overall the visit was terrible.
It’s been about a year and a half since we made the decision to have Alex placed outside the home, and still he has these horrible periods of sibbing (to “sib” means to engage in self-injurious behaviors). We took some … Continue reading
We’re going to be lodging a complaint against the hospital if something incredible doesn’t happen relatively soon. After Alex’s dental appointment on Wednesday, he had five teeth pulled, five fillings, a crown, and a root canal.
We hadn’t been able to give Alex hash (we can’t do it on the premises of the facility, so it’s a tricky problem when he’s too angry to take anywhere), and his mood was improving. We’re not the kind of … Continue reading
Best visit ever!! We saw Alex this weekend, and it was by far our best visit ever. He’s happier than he’s been in a very long time. He only had one really serious meltdown, and it lasted only about ten … Continue reading
We heard that Alex wasn’t doing well at his new home, and went to visit him last weekend. It was nothing short of a nightmare. He’s having the roughest time I’ve seen since he left us. We brought up some … Continue reading