It’s hard to figure out without reading the whole blog, so I decided to try to regularly update our current agenda. Basically this is to answer the question, “what do you want?”
Simple:
- We want Alex on cannabis in his group home
- We want to expose others to how much pain prohibition has caused a completely innocent child
We want Alex’s group home to give him the one medicine that has shown great promise.
- We want him off every other medication if possible.
- We want to see if cannabis can manage his seizures, high blood pressure, and behaviors without need for other, toxic medications.
- The pie-in-the-sky dream would be to see Alex back home, at least for a little while. I don’t dare hope that we could actually care for him long-term again, but it would be incredible if marijuana could stabilize him enough to have him stay with us on weekends or something.
Prohibition is an utter failure. It’s a debate of science vs. ignorance. For us, it has meant that we don’t know how to get the right dose, what kind of dosing would work best, what strains could be better for Alex, etc. Basically, prohibition of cannabis has taken away a very good option for Alex’s medication choices.
In any elections in your area where marijuana initiatives are on the ballot, vote wisely — marijuana is one of the safest medications we have, and education is the most powerful weapon we have. I for one have decided to look at every politician’s drug policy stance as my number one issue prior to voting. Other issues are important to me, but none so much as ending the drug war.
Pingback: Marijuana, autism, and failure: a true story « Alex's Story
I listened to your interview on ‘A Different View,’ and was touched by your dedication to your son. I read an article once about THC in a pill form. I was wondering if perhaps this is somthing that your sons care providers would be willing to provide, or if you had ever tried it for your son.
We did try Marinol, but Alex doesn’t really understand pills. He would just spit them out. The center would administer it if he were willing to take it.
Look into research on THC being done in Israel where they have isolated the compound and do precise research and testing. I don’t remember the name of the Dr. I read about but I am sure you can find it on the net. Good luck!
THC may not be the key. I found http://abclocal.go.com/kabc/story?section=news/health&id=6989085 an article about a lady treating her 10-year-old autistic son who is now a different boy his mom says.
While the mom didn’t release her name, it may be possible for you to give the station your information.
I just ran across this, seems like this blog has been going for a few years now so i am not sure what progress you have made in finding medicine for your son. But I can probably help you, I own a center in Colorado. Obviously I cannot mail you anything but i can teach you how to make edibles for your son. There are ways for you to make your own hash oil, its not that difficult. That is my first thought. My second thought may even be easier…..you should move you and your son to Colorado where mmj is legal. We have an entire industry devoted to medical marijuana out here. If anything, you should visit Colorado, I am sure it would help you.
I wish you the best. If you want to talk, please reply with an email address and I will send you my contact info.