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- Why are we doing this? What do we want? Read our Agenda.
Who is Alex?Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.
Monthly Archives: May 2010
Best visit ever!! We saw Alex this weekend, and it was by far our best visit ever. He’s happier than he’s been in a very long time. He only had one really serious meltdown, and it lasted only about ten … Continue reading
I talked to a reporter today, after being contacted a little while ago and playing email tag for a bit. Who knows if anything will come of it, but he at least finds the story pretty interesting. In CA, where … Continue reading
Not much to say – check out the video section, and you’ll find a new video with clips that actually make you feel hopeful instead of depressed. These are clips from two of his really good marijuana doses, where he … Continue reading
Marijuana isn’t the danger so many people think it is. Even though it’s illegal, most of that is due to tradition – a tradition primarily rooted in fear, misunderstanding, and misinformation.
Alex’s introductory article has spurred a few questions from people we know, and some confusion, so I modified that article a bit, but figure I should follow up as well.
I’ve just uploaded a video containing clips of some of the most difficult self-abuse Alex has ever had – just click on “Video” in the upper-right – or click here. The first clip is when Alex was around 3 or … Continue reading
We recently found out that Alex has a cardiac rhabdomyoma, which is very bad news for his condition. Usually heart growths from Tuberous Sclerosis are found early in life, and don’t grow. The fact that he’s never had anything until … Continue reading
Read Alex’s Story before this if you want to know who we’re talking about here. A quick summary, though: Alex is a child with autism, seizures, and severe self-injurious behaviors We’ve tried many medications and talked to several specialists over … Continue reading
We heard that Alex wasn’t doing well at his new home, and went to visit him last weekend. It was nothing short of a nightmare. He’s having the roughest time I’ve seen since he left us. We brought up some … Continue reading