- Why are we doing this? What do we want? Read our Agenda.
Who is Alex?
Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.Read his overview or in-depth introduction.
Tag Archives: visit
Bad visit; light at the end of the tunnel
Saturday was a pretty bad visit again. Alex was driven to our home and we had him picked up just two hours after his arrival. It wasn’t as bad as last weekend in terms of general self-abuse, but there wasn’t … Continue reading
Another bad day
Today was definitely a lot different than last weekend. We had to watch Alex beating himself up, bite, scream, and generally have a rough time. And every time it seemed we’d figured out what he needed to be happy, it … Continue reading
Finally
First really good visit in weeks. We spent just under three hours with Alex, and he was happy the whole time. Not just content, but happy, playful, and interested in his surroundings.
Two bad visits in a row
Friday the 15th, Alex’s grandmother (my mother), came up to visit the family and got to see Alex at his home, but he was in a fairly bad mood for the whole visit. We only spent an hour there, and … Continue reading
Why giving hash early is the right approach
This past Saturday, Alex was driven up to visit us, and most of the visit was great, but there were a few incredible outbursts when we took him for a drive to Arby’s. He was doing so well we figured … Continue reading
Addendum – March 2011
Well, today we had Alex over for a visit to our home, and I have to say it was amazing. It makes up for all the difficulties we’ve seen this month. He was happy, playful, talkative, and very attentive and … Continue reading
Ativan to the rescue
Recent visits have been very hit and miss, though Saturday’s was pretty amazing. We got some wonderful pictures of Alex, and a very rare video of him in his big leather rocking chair with his mom — usually she has … Continue reading
Alex’s big move
On the morning of the 21st, Alex moved to his new home, and my wife was able to be there the whole day to help with the transition. From what I hear, it was a decent day, but nothing amazing.
Yesterday was really nice
We visited Alex yesterday. Since we know our days our numbered, we figure we can afford the extra gas that comes with visiting a lot again, so we’re going to try to get in a lot of visiting before he’s … Continue reading
Fewer visits means better visits?
Ever since Alex stopped seeming comfortable with visits to our home, we’ve just taken to visiting him. But as much as we need to see him, we can’t see him as often as we have been. We’re down to twice … Continue reading