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Who is Alex?Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.
Tag Archives: visit
First, since surgery, Alex has been doing really well. This should not be the case from everything we’ve learned about the SEGA (the growth in his brain they removed), but we’re not going to complain. We’ve been told by doctors … Continue reading
We visited Alex on the way back from the grower, and he was doing pretty well, though he needs to be wrapped up, and is definitely wanting to do more running than he’s allowed to. The surgery definitely hasn’t slowed … Continue reading
It’s been suggested we keep the blog going as well as the facebook page, since a lot of people won’t follow the Facebook stuff, so I’m going to try and put up the longer updates and such here.
Alex’s mood has taken a major turn for the worse, as I mentioned a couple weeks ago, but now it’s gotten downright awful. The behaviors we’ve seen in the past three or four visits might be the worst since we … Continue reading
I write to tell about what has happened in Alex’s life, or to mention exciting activism-related information. But Alex’s status hasn’t changed in such a long time that there hasn’t been much to say other than describing the up-and-down nature … Continue reading
It’s been a long time since an update, primarily because of the move. We’re now about a twenty-minute drive from Alex, so we can see him throughout the week instead of only on weekends. Of course with all the craziness … Continue reading
In the past ten or so visits, we’ve used the tincture probably six or seven times. So far, every single time we’ve used it, the visit has been really good.
It’s been a long time without an update, due to a complication with a “minor” surgical procedure on yours truly. Alex’s moods have been up and down, there’s not really much to say about them, but even so I’d prefer … Continue reading
A bit ago I spoke with my grower (Alex’s grower, technically — but I am the caregiver so that has to count for something), and he mentioned eating hash usually requires a pretty large amount for most people he’s dealt … Continue reading