- Why are we doing this? What do we want? Read our Agenda.
Who is Alex?
Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.Read his overview or in-depth introduction.
Tag Archives: rage
What’s the problem? Why can’t Alex just come home so we can figure this out?
With the recent surge in traffic I’ve seen variations of these questions posted as comments as well as asked directly. Some people think that if cannabis works to calm Alex, then we have no good reason to not take Alex … Continue reading
One visit, many moods
Today we had Alex driven up to our house for his visit, and to meet his new baby sister. His mood was all over the place, and we had a few really great moments, but overall the visit was terrible.
Alex’s sibbing is still a major problem
It’s been about a year and a half since we made the decision to have Alex placed outside the home, and still he has these horrible periods of sibbing (to “sib” means to engage in self-injurious behaviors). We took some … Continue reading
Another bad day
Today was definitely a lot different than last weekend. We had to watch Alex beating himself up, bite, scream, and generally have a rough time. And every time it seemed we’d figured out what he needed to be happy, it … Continue reading
Ativan to the rescue
Recent visits have been very hit and miss, though Saturday’s was pretty amazing. We got some wonderful pictures of Alex, and a very rare video of him in his big leather rocking chair with his mom — usually she has … Continue reading
Alex’s big move
On the morning of the 21st, Alex moved to his new home, and my wife was able to be there the whole day to help with the transition. From what I hear, it was a decent day, but nothing amazing.
At least we know the hash isn’t hurting him….
We hadn’t been able to give Alex hash (we can’t do it on the premises of the facility, so it’s a tricky problem when he’s too angry to take anywhere), and his mood was improving. We’re not the kind of … Continue reading
It’s a roller coaster still
Tuesday was good for Alex, it seems. We didn’t try to take him anywhere, just visited his home and spent time walking around outside with him. He had a few episodes where he hit himself or rubbed really hard at … Continue reading
We’ve hit a new low
I don’t know what happened. Alex was so bad that he now has several new (and rather awful) bruises from biting his arms and hands. He bit himself, then while holding the bite pulled his arm / hand away from … Continue reading
Alex updates – August 17th
It’s been a while since I had much to say about Alex’s situation. He’s been his usual self, on and off rage issues, and it’s just been hard to want to write much when his situation is only a little … Continue reading