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Who is Alex?Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.
Tag Archives: rage
We visited Alex on the way back from the grower, and he was doing pretty well, though he needs to be wrapped up, and is definitely wanting to do more running than he’s allowed to. The surgery definitely hasn’t slowed … Continue reading
There’s still not a lot to say. Alex hasn’t been doing too great lately, and even when he’s in a good mood he has to be wrapped up in a blanket or something that can similarly restrict his hands, otherwise … Continue reading
Alex’s mood has taken a major turn for the worse, as I mentioned a couple weeks ago, but now it’s gotten downright awful. The behaviors we’ve seen in the past three or four visits might be the worst since we … Continue reading
With the recent surge in traffic I’ve seen variations of these questions posted as comments as well as asked directly. Some people think that if cannabis works to calm Alex, then we have no good reason to not take Alex … Continue reading
Today we had Alex driven up to our house for his visit, and to meet his new baby sister. His mood was all over the place, and we had a few really great moments, but overall the visit was terrible.
It’s been about a year and a half since we made the decision to have Alex placed outside the home, and still he has these horrible periods of sibbing (to “sib” means to engage in self-injurious behaviors). We took some … Continue reading
Today was definitely a lot different than last weekend. We had to watch Alex beating himself up, bite, scream, and generally have a rough time. And every time it seemed we’d figured out what he needed to be happy, it … Continue reading
Recent visits have been very hit and miss, though Saturday’s was pretty amazing. We got some wonderful pictures of Alex, and a very rare video of him in his big leather rocking chair with his mom — usually she has … Continue reading
On the morning of the 21st, Alex moved to his new home, and my wife was able to be there the whole day to help with the transition. From what I hear, it was a decent day, but nothing amazing.