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Who is Alex?Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.
Tag Archives: media
First, since surgery, Alex has been doing really well. This should not be the case from everything we’ve learned about the SEGA (the growth in his brain they removed), but we’re not going to complain. We’ve been told by doctors … Continue reading
The interview is definitely going to air. We’ve even been contacted by somebody who saw a trailer for the interview. It was suggested that we put Alex’s story up on Facebook since it’s more visible there (and easier for us … Continue reading
We just finished a brief interview with a local TV station. It was grueling, but mostly because I hate remembering the day we had to tear our family apart. And, of course, that pain is what makes our story so … Continue reading
So now we’ve been asked for multiple interviews. As I mentioned in the past, ABC interviewed us but never aired the story. Well, this year we’ve been offered three interviews total.
I’m tired of waiting. ABC interviewed us in April. They were going to run a story about Alex’s situation, and it was going to be aired nationally, not just locally. I wasn’t going to say anything here until we had … Continue reading
I was interviewed last week by NORML’s “A Different View” crew: http://www.facebook.com/ADifferentView420. The show will air tomorrow at 8:00pm and includes a brief discussion with myself and two other parents who have made the decision to use cannabis on their … Continue reading