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- Why are we doing this? What do we want? Read our Agenda.
Who is Alex?
Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.Read his overview or in-depth introduction.
Tag Archives: home
What’s the problem? Why can’t Alex just come home so we can figure this out?
With the recent surge in traffic I’ve seen variations of these questions posted as comments as well as asked directly. Some people think that if cannabis works to calm Alex, then we have no good reason to not take Alex … Continue reading
Alex’s sibbing is still a major problem
It’s been about a year and a half since we made the decision to have Alex placed outside the home, and still he has these horrible periods of sibbing (to “sib” means to engage in self-injurious behaviors). We took some … Continue reading
The Portland move
Recently Alex was moved to a home in Portland so he could be closer to his primary medical care. He’s back in his old home now even though the home and the house manager seemed like a wonderful fit. Why? … Continue reading
Oops
We made a mistake and told too many people about a situation we meant to keep a bit more “secret” for a while. It’s probably not a big deal, but we should have mentioned to those people not to go … Continue reading
Alex is moving away
Not a lot to be said, really. It’s been made very clear that we have no choice in the matter. Alex is moving further from us, which we knew had to happen eventually, but he’s also moving further away from … Continue reading
Our home is no longer Alex’s
This is mostly just me whining tonight. No agenda, no real updates to speak of. Alex’s situation is more or less the same as it’s been for a while now, and I’m mostly just waiting to see how prop 19 … Continue reading
A rougher week than usual
Alex’s previous few visits have been very hit and miss. I’m not sure if something new is bothering him, but on the 4th, he had a very rough time with me. (I wrote the previous update before my visit, so … Continue reading