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Who is Alex?
Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.Read his overview or in-depth introduction.
Tag Archives: hash
Saturday visit – mixed results
A bit ago I spoke with my grower (Alex’s grower, technically — but I am the caregiver so that has to count for something), and he mentioned eating hash usually requires a pretty large amount for most people he’s dealt … Continue reading
Another bad day
Today was definitely a lot different than last weekend. We had to watch Alex beating himself up, bite, scream, and generally have a rough time. And every time it seemed we’d figured out what he needed to be happy, it … Continue reading
Finally
First really good visit in weeks. We spent just under three hours with Alex, and he was happy the whole time. Not just content, but happy, playful, and interested in his surroundings.
Oops
We made a mistake and told too many people about a situation we meant to keep a bit more “secret” for a while. It’s probably not a big deal, but we should have mentioned to those people not to go … Continue reading
Thanksgiving update, rapamune success maybe
Alex had an incredible Thanksgiving. My whole family came up to visit for part of the weekend, and it was really nice to see everybody, but the real reward was when we tried a new trick with the hash in … Continue reading
The hash and the fat
Well, we processed the harvest and ended up with a surprisingly small amount of hash. It’s enough to give Alex probably 100 doses, so I can’t really complain, but it was a lot less than I expected, considering how much … Continue reading
Mid-September Update
A lot has been going on lately and not much time to write. Alex’s mood has been very erratic, and we can’t really figure out how to explain it, so it’s just another mystery. He’s on allergy meds now, so … Continue reading
At least we know the hash isn’t hurting him….
We hadn’t been able to give Alex hash (we can’t do it on the premises of the facility, so it’s a tricky problem when he’s too angry to take anywhere), and his mood was improving. We’re not the kind of … Continue reading
Alex updates – August 17th
It’s been a while since I had much to say about Alex’s situation. He’s been his usual self, on and off rage issues, and it’s just been hard to want to write much when his situation is only a little … Continue reading
Updates – June 19th
This was a wonderful week. I’m getting more settled into my job, I’ve got my computer set up so I can keep in touch with everybody supporting us, and more importantly, all four visits with Alex went really well. I … Continue reading