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Who is Alex?Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.
Tag Archives: cannabis
I touched a little on it recently, but Alex’s new home’s upper management seem to be significantly more concerned about doing what’s best for Alex than his last home. This is just one of many reasons I’m thinking this year … Continue reading
Alex visits are extremely draining when he’s almost three hours away (round trip). As such, I won’t be posting a lot about him unless there are major changes. But I figured our ballot measure is worth at least a quick … Continue reading
This is a bit delayed, but we finally got Alex out of KKI and back to Oregon! He won’t be getting back on OMMP any time soon as his new home is over 90 minutes away from us, making daily … Continue reading
Well, after a lot of fighting we got Alex to the Kennedy Krieger Institute. It was a ridiculous battle, and shame on Providence for trying to deny somebody as obviously in need as Alex. Their initial denial was flimsy at … Continue reading
The federal government recently refused to reclassify cannabis, stating it still hasn’t been proven to have medical value. Of course, it’s a tough thing to prove when the government allows very limited research on the subject. And to be honest, … Continue reading
We visited Alex on the way back from the grower, and he was doing pretty well, though he needs to be wrapped up, and is definitely wanting to do more running than he’s allowed to. The surgery definitely hasn’t slowed … Continue reading
It’s been suggested we keep the blog going as well as the facebook page, since a lot of people won’t follow the Facebook stuff, so I’m going to try and put up the longer updates and such here.
We just finished a brief interview with a local TV station. It was grueling, but mostly because I hate remembering the day we had to tear our family apart. And, of course, that pain is what makes our story so … Continue reading
There’s still not a lot to say. Alex hasn’t been doing too great lately, and even when he’s in a good mood he has to be wrapped up in a blanket or something that can similarly restrict his hands, otherwise … Continue reading
Check it out, straight from the state’s website: 7/13/12 Signature verification complete. Petition contained 88,887 valid signatures, or 58.53% of the 151,870 signatures accepted for verification. Qualified to the ballot for the November 2012 Election. Looks like circulators did a … Continue reading