Comments for Alex's Story http://www.alexneedshelp.com Autism, rage, marijuana, and heartbreak Sat, 18 May 2013 18:05:56 +0000 hourly 1 http://wordpress.org/?v=3.1.2 Comment on Agenda by Angie http://www.alexneedshelp.com/agenda/comment-page-1#comment-6471 Angie Sat, 18 May 2013 18:05:56 +0000 http://www.alexneedshelp.com/?page_id=193#comment-6471 <p>Is this lady Darragh for real? Really? Holy moly lady, this family doesn't need a friggin Behavioral Analyst! They need medical help for their child to rid the child of tumors causing him unbearable episodic pain that triggers the self injurious behavior. Behavioral therapy doesn't do jack for most children or adults with severe self injurious behavior because the underlying cause is UNTREATED medical issues that are causing discomfort. ONLY when these are treated would you even attempt a behavioral therapy plan. Imagine if you, the behavioral analyst, had cancer. And everyday you were puking your guts out and had severe headaches and stomach pain. And you were so stressed by this you started biting your nails and banging your head. And then in walks a behavioral analyst to save the day.</p> Is this lady Darragh for real? Really? Holy moly lady, this family doesn’t need a friggin Behavioral Analyst! They need medical help for their child to rid the child of tumors causing him unbearable episodic pain that triggers the self injurious behavior. Behavioral therapy doesn’t do jack for most children or adults with severe self injurious behavior because the underlying cause is UNTREATED medical issues that are causing discomfort. ONLY when these are treated would you even attempt a behavioral therapy plan. Imagine if you, the behavioral analyst, had cancer. And everyday you were puking your guts out and had severe headaches and stomach pain. And you were so stressed by this you started biting your nails and banging your head. And then in walks a behavioral analyst to save the day.

]]> Comment on I think I’m done by Angie http://www.alexneedshelp.com/i-think-im-done/comment-page-1#comment-6469 Angie Sat, 18 May 2013 17:57:36 +0000 http://www.alexneedshelp.com/?p=920#comment-6469 <p>You are amazing parents. You obviously love your son. Nobody can judge you for placing him outside the home. And just because you did, doesn't mean you're giving up. It is more than reasonable for your family to take time to heal from the hell you've been through trying to get help for your sweet son. Placing him doesn't mean erasing him. You can always bring him back home anytime you want. It's your choice. It's your life. Nobody else is living it. You deserve some happiness, peace and joy. Your son deserves the best treatment possible. I hear your pain when you describe the ups and downs of dealing with a child's behavioral and medical issues. And the despair and agony of finding the RIGHT treatments. And when you do, they work for awhile and then don't. You are not alone here in your suffering, if that's any comfort. Blog after blog tells of parents of special needs children fed up, struggling with conventional medications. I'm sorry the cannabis doesn't always work for your son. I understand what you're saying about how absurd the search is for medical cannabis strains. It's an unregulated ambiguous mess leaving parents in crisis mode trying to figure out what strain works, where to get it, how much to give and what scientific studies support each specific strain and why. I agree, further research is critical in understanding the underlying mechanism of action of cannabis strains on the brain. I don't know much about your son's medical condition (TS), but it sounds like you are doing everything possible to help him. I wish for you and your family the next years will be filled with peace, joy and miraculous breakthroughs. Don't lose hope, though I know there are days you do, and I understand that hopelessness. I don't want to tell you to keep fighting because that puts you in a constant battle mode. So, I'll just say, keep researching, keep praying (and yes I understand wondering what kind of God would put a child through such hell, but pray anyway so you have at least the hope that someone outside this crazy world is hearing your cries for help, your rage, your pain, your disappointment, and despite how you feel , is going to help). "No one whose hope is in God will ever be put to shame." (Psalm 25:3). Please God help this family. Do not let there hard work be for nothing. Do not let their child continue to suffer these hellish ups and downs. Direct the parents to the right doctors. The RIGHT treatments. Don't let them stay in this chaos. No more God. Please, deliver them from this nightmare. Do a miracle for their family God, hear the cries and pain and move fast to help them.</p> You are amazing parents. You obviously love your son. Nobody can judge you for placing him outside the home. And just because you did, doesn’t mean you’re giving up. It is more than reasonable for your family to take time to heal from the hell you’ve been through trying to get help for your sweet son. Placing him doesn’t mean erasing him. You can always bring him back home anytime you want. It’s your choice. It’s your life. Nobody else is living it. You deserve some happiness, peace and joy. Your son deserves the best treatment possible. I hear your pain when you describe the ups and downs of dealing with a child’s behavioral and medical issues. And the despair and agony of finding the RIGHT treatments. And when you do, they work for awhile and then don’t. You are not alone here in your suffering, if that’s any comfort. Blog after blog tells of parents of special needs children fed up, struggling with conventional medications. I’m sorry the cannabis doesn’t always work for your son. I understand what you’re saying about how absurd the search is for medical cannabis strains. It’s an unregulated ambiguous mess leaving parents in crisis mode trying to figure out what strain works, where to get it, how much to give and what scientific studies support each specific strain and why. I agree, further research is critical in understanding the underlying mechanism of action of cannabis strains on the brain. I don’t know much about your son’s medical condition (TS), but it sounds like you are doing everything possible to help him. I wish for you and your family the next years will be filled with peace, joy and miraculous breakthroughs. Don’t lose hope, though I know there are days you do, and I understand that hopelessness. I don’t want to tell you to keep fighting because that puts you in a constant battle mode. So, I’ll just say, keep researching, keep praying (and yes I understand wondering what kind of God would put a child through such hell, but pray anyway so you have at least the hope that someone outside this crazy world is hearing your cries for help, your rage, your pain, your disappointment, and despite how you feel , is going to help). “No one whose hope is in God will ever be put to shame.” (Psalm 25:3). Please God help this family. Do not let there hard work be for nothing. Do not let their child continue to suffer these hellish ups and downs. Direct the parents to the right doctors. The RIGHT treatments. Don’t let them stay in this chaos. No more God. Please, deliver them from this nightmare. Do a miracle for their family God, hear the cries and pain and move fast to help them.

]]> Comment on The Marinol Myth – or – How To Lie To America by Mike http://www.alexneedshelp.com/the-marinol-myth-or-how-to-lie-to-america/comment-page-1#comment-6341 Mike Thu, 16 May 2013 17:15:49 +0000 http://www.alexneedshelp.com/?p=333#comment-6341 <p>Marinol works fine. My opinion of the posts on this section is they are more geared toward legalizing marijauna than taking Marinol as a drug itself. It is not a similar high to maijuana. Having been a former d</p> <p>rug user I can say the hugh is nice and cerebral, its calming and I love f</p> Marinol works fine. My opinion of the posts on this section is they are more geared toward legalizing marijauna than taking Marinol as a drug itself. It is not a similar high to maijuana. Having been a former d

rug user I can say the hugh is nice and cerebral, its calming and I love f

]]> Comment on Why cannabis must be legalized – a non-user’s perspective by Dr Jo http://www.alexneedshelp.com/why-cannabis-must-be-legalized-a-non-users-perspective/comment-page-1#comment-5880 Dr Jo Thu, 09 May 2013 06:51:50 +0000 http://www.alexneedshelp.com/?p=900#comment-5880 <p>As an ASD sufferer I can fully sympathise with your plight. And I fully agree with David DelVeccio's analyses of the situation. To add more to this viewpoint I believe cannabis will never be legalised in western nations for similar global financial reasons. If we in the west were to legalise cannabis then all of those countries most indebted to the word bank (sters), would have a simple to grow easy to harvest top dollar crop, they could pay off their debts quickly and the banksters would be left owning nothing (instead of everything, read water, forestry and mineral rights). This is why I believe their will never be a relaxation in the laws surrounding cannabis. I know this doesn't help but I think it's an important part of the puzzle when trying to understand why our governments attitudes seem to be in contradiction to the amassing evidence for genuine medical use of cannabinoids (inc. high CBD low THC strains for autism sufferers).</p> As an ASD sufferer I can fully sympathise with your plight. And I fully agree with David DelVeccio’s analyses of the situation. To add more to this viewpoint I believe cannabis will never be legalised in western nations for similar global financial reasons. If we in the west were to legalise cannabis then all of those countries most indebted to the word bank (sters), would have a simple to grow easy to harvest top dollar crop, they could pay off their debts quickly and the banksters would be left owning nothing (instead of everything, read water, forestry and mineral rights). This is why I believe their will never be a relaxation in the laws surrounding cannabis. I know this doesn’t help but I think it’s an important part of the puzzle when trying to understand why our governments attitudes seem to be in contradiction to the amassing evidence for genuine medical use of cannabinoids (inc. high CBD low THC strains for autism sufferers).

]]> Comment on I think I’m done by Alana http://www.alexneedshelp.com/i-think-im-done/comment-page-1#comment-5636 Alana Sun, 05 May 2013 12:14:57 +0000 http://www.alexneedshelp.com/?p=920#comment-5636 <p>Is it possible that because of the change in environment (not being at home ) would affect the results of the medication? From what I've read, autistic children do not like change.</p> Is it possible that because of the change in environment (not being at home ) would affect the results of the medication? From what I’ve read, autistic children do not like change.

]]> Comment on I think I’m done by Lisa Johnson http://www.alexneedshelp.com/i-think-im-done/comment-page-1#comment-5424 Lisa Johnson Wed, 01 May 2013 22:11:21 +0000 http://www.alexneedshelp.com/?p=920#comment-5424 <p>You ARE good parents! Even in a shitty situation you guys put him first. You don't stop thinking, fighting, and helping your son. That right there says you two are good parents! Hope things get better for him (and his family)</p> You ARE good parents! Even in a shitty situation you guys put him first. You don’t stop thinking, fighting, and helping your son. That right there says you two are good parents! Hope things get better for him (and his family)

]]> Comment on I think I’m done by alisa leposki http://www.alexneedshelp.com/i-think-im-done/comment-page-1#comment-5176 alisa leposki Sun, 28 Apr 2013 19:14:45 +0000 http://www.alexneedshelp.com/?p=920#comment-5176 <p>As a parent of a child similar to Alex. I can completely understand how you are feeling. We recently were told to change our sons meds and doctors assumed we did it. We didn't. His school.called me and said they love the way the new meds were working and keep it up. Hes been a different kid lately but he has been totally healthy. So we have no clue as to why he is doing better. who knows what tomorrow brings but bring it on! Stay strong. You are amazing parents to one special kid.</p> As a parent of a child similar to Alex. I can completely understand how you are feeling. We recently were told to change our sons meds and doctors assumed we did it. We didn’t. His school.called me and said they love the way the new meds were working and keep it up. Hes been a different kid lately but he has been totally healthy. So we have no clue as to why he is doing better. who knows what tomorrow brings but bring it on! Stay strong. You are amazing parents to one special kid.

]]> Comment on I think I’m done by Pam http://www.alexneedshelp.com/i-think-im-done/comment-page-1#comment-5171 Pam Sun, 28 Apr 2013 18:49:13 +0000 http://www.alexneedshelp.com/?p=920#comment-5171 <p>My heart aches for you. Alex is a beautiful boy, and he is so lucky to have you for parents. The Lord knew what he was doing when He sent Alex to you, and He is never wrong. This journey has been painful and frustrating, no doubt its not what you expected. Yet you are carrying on with dignity and love. You are heroes in my eyes. Please don't let those who would judge hurt your spirit. They know nothing of your struggles and have never walked in your shoes. I thank you for sharing Alex's story up to now, and will look forward to good news when it comes. In the meantime, please know that many prayers and thoughts are with you.</p> My heart aches for you. Alex is a beautiful boy, and he is so lucky to have you for parents. The Lord knew what he was doing when He sent Alex to you, and He is never wrong. This journey has been painful and frustrating, no doubt its not what you expected. Yet you are carrying on with dignity and love. You are heroes in my eyes. Please don’t let those who would judge hurt your spirit. They know nothing of your struggles and have never walked in your shoes. I thank you for sharing Alex’s story up to now, and will look forward to good news when it comes. In the meantime, please know that many prayers and thoughts are with you.

]]> Comment on I think I’m done by Patricia Peveto http://www.alexneedshelp.com/i-think-im-done/comment-page-1#comment-5170 Patricia Peveto Sun, 28 Apr 2013 18:44:39 +0000 http://www.alexneedshelp.com/?p=920#comment-5170 <p>God bless you all. Thank you for putting your story out there. I'm sorry that things don't have a happy ending YET. Don't worry about everyone else, concentrate on you and Alex. Concentrate on what makes your family work. Love in Christ.</p> God bless you all. Thank you for putting your story out there. I’m sorry that things don’t have a happy ending YET. Don’t worry about everyone else, concentrate on you and Alex. Concentrate on what makes your family work. Love in Christ.

]]> Comment on I think I’m done by janet http://www.alexneedshelp.com/i-think-im-done/comment-page-1#comment-5169 janet Sun, 28 Apr 2013 18:44:05 +0000 http://www.alexneedshelp.com/?p=920#comment-5169 <p>I am sorry to hear you are not going to be posting updates for us anymore, I am sorry the tincture isn't working, I am sorry the system will not allow for you to try different things, I am sorry society sucks, and I am sorry that you cannot legally do what you want for your child...however, I am not sorry that I have followed Alex's story, I have learned so very much from you, and I love it when Alex is at home and seems happy. I just wish that somethings could be different, but I know you feel that you have done everything you can, but you must continue to go forward. I know that staying strong is hard, it is so easy for me to say, because I am not in your situation, but for the sake of Alex, you must. You are not bad parents, and that is a repeat YOU ARE NOT BAD PARENTS. You are doing everything in your power to keep him safe, and happy, but sometimes you feel as if you aren't. please don't ever doubt that....EVER. You are wonderful parents, but you have other children as well. I will pray for you and your family, and just keep doing what you are doing. I do believe that you will find an answer one day.....but even if there isn't one for Alex, then your battle will not be in vain, because every day you are touching someone, you are giving someone else hope, and you are fighting to help someone else to change laws, and open new doors for other people like Alex. Please hang in there.....and above all, just keep loving Alex, and your family....and never give up...</p> I am sorry to hear you are not going to be posting updates for us anymore, I am sorry the tincture isn’t working, I am sorry the system will not allow for you to try different things, I am sorry society sucks, and I am sorry that you cannot legally do what you want for your child…however, I am not sorry that I have followed Alex’s story, I have learned so very much from you, and I love it when Alex is at home and seems happy. I just wish that somethings could be different, but I know you feel that you have done everything you can, but you must continue to go forward. I know that staying strong is hard, it is so easy for me to say, because I am not in your situation, but for the sake of Alex, you must. You are not bad parents, and that is a repeat YOU ARE NOT BAD PARENTS. You are doing everything in your power to keep him safe, and happy, but sometimes you feel as if you aren’t. please don’t ever doubt that….EVER. You are wonderful parents, but you have other children as well. I will pray for you and your family, and just keep doing what you are doing. I do believe that you will find an answer one day…..but even if there isn’t one for Alex, then your battle will not be in vain, because every day you are touching someone, you are giving someone else hope, and you are fighting to help someone else to change laws, and open new doors for other people like Alex. Please hang in there…..and above all, just keep loving Alex, and your family….and never give up…

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