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Who is Alex?
Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.Read his overview or in-depth introduction.
Category Archives: Alex
I think I’m done
After stating the blog would go on, I haven’t touched it. Partly I don’t feel like putting up more because I’m satisfied that Alex’s story was able to really be told. Partly I feel like the updates aren’t helpful since … Continue reading
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A happy Alex, yet another interview, and other updates
First, since surgery, Alex has been doing really well. This should not be the case from everything we’ve learned about the SEGA (the growth in his brain they removed), but we’re not going to complain. We’ve been told by doctors … Continue reading
We’re finally back home
We visited Alex on the way back from the grower, and he was doing pretty well, though he needs to be wrapped up, and is definitely wanting to do more running than he’s allowed to. The surgery definitely hasn’t slowed … Continue reading
Alex post-surgery updates… and more!
It’s been suggested we keep the blog going as well as the facebook page, since a lot of people won’t follow the Facebook stuff, so I’m going to try and put up the longer updates and such here.
Moving to Facebook… maybe….
The interview is definitely going to air. We’ve even been contacted by somebody who saw a trailer for the interview. It was suggested that we put Alex’s story up on Facebook since it’s more visible there (and easier for us … Continue reading
It’s interview day again
We just finished a brief interview with a local TV station. It was grueling, but mostly because I hate remembering the day we had to tear our family apart. And, of course, that pain is what makes our story so … Continue reading
Interviews and the media
So now we’ve been asked for multiple interviews. As I mentioned in the past, ABC interviewed us but never aired the story. Well, this year we’ve been offered three interviews total.
Boy, when it rains…
In the past month I’ve missed something like 6 days due to various medical situations. First my father got incredibly sick and I actually expected I was going to be attending a funeral. Then my wife, kids, and I all … Continue reading
Losing motivation
There’s still not a lot to say. Alex hasn’t been doing too great lately, and even when he’s in a good mood he has to be wrapped up in a blanket or something that can similarly restrict his hands, otherwise … Continue reading
Looks like we’re in for another rough patch
Alex’s mood has taken a major turn for the worse, as I mentioned a couple weeks ago, but now it’s gotten downright awful. The behaviors we’ve seen in the past three or four visits might be the worst since we … Continue reading