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Who is Alex?
Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.Read his overview or in-depth introduction.
Monthly Archives: August 2011
Alex’s sibbing is still a major problem
It’s been about a year and a half since we made the decision to have Alex placed outside the home, and still he has these horrible periods of sibbing (to “sib” means to engage in self-injurious behaviors). We took some … Continue reading
The Portland move
Recently Alex was moved to a home in Portland so he could be closer to his primary medical care. He’s back in his old home now even though the home and the house manager seemed like a wonderful fit. Why? … Continue reading
Does Alex know us anymore?
As we were camping over the weekend, we visited Alex on Monday this week, and it was a pretty awful visit. Within about two hours we had to leave due to how much Alex was hurting himself. Though sad, this … Continue reading