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Who is Alex?
Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.Read his overview or in-depth introduction.
Monthly Archives: July 2011
Portugal’s successes overstated?
I can’t find the specific article now, but the news is fairly old: Portugal decriminalized most drugs a while back, and it’s been touted as a huge success There was a wonderful quote somewhere out there about the numbers being … Continue reading
Alex got the recommendation again
This isn’t really a surprise, but it was an interesting visit all the same. We were there for about 30-45 minutes, and the doctor was 100% in agreement about medical marijuana for Alex. With his seizure disorder, rage, and huge … Continue reading
Wish us luck for renewing Alex’s OMMP card!
Tomorrow is the appointment with Alex’s doctor. If we don’t get a renewal there, we’ll probably wait until Alex has moved (in a few weeks) to try with another doctor, but we’re really hoping that we can get him back … Continue reading
The complaint
We’re going to be lodging a complaint against the hospital if something incredible doesn’t happen relatively soon. After Alex’s dental appointment on Wednesday, he had five teeth pulled, five fillings, a crown, and a root canal.
Visitation updates for July and other fun stuff
Recently, our visits have taken a slight turn for the better. On Saturday the 2nd, Alex was driven to our home and had a pretty awful day, but on the 3rd we visited him with his cousin and grandmother, and … Continue reading