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Who is Alex?
Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.Read his overview or in-depth introduction.
Monthly Archives: October 2010
Prop 19 is about freedom, not nurses getting high and killing us all
This scare tactic is pissing me off a lot. Prop 19 is way too important to let idiots with pretty lies and a hidden agenda foul it up.
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Our home is no longer Alex’s
This is mostly just me whining tonight. No agenda, no real updates to speak of. Alex’s situation is more or less the same as it’s been for a while now, and I’m mostly just waiting to see how prop 19 … Continue reading
The new medication
Last Monday, Alex started on Rapamune finally. It’s a wonderful but horrible medication for Alex. In terms of risks and side-effects, it scares the hell out of me, but for Alex’s situation (TSC and autism), it’s one of the few … Continue reading