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Who is Alex?Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.
Monthly Archives: August 2010
Today’s visit was far better than usual. In fact, it was one of the happiest for him since he’s left home. He was running around and smiling and giggly and I have no pictures or videos to show for it!
Tuesday was good for Alex, it seems. We didn’t try to take him anywhere, just visited his home and spent time walking around outside with him. He had a few episodes where he hit himself or rubbed really hard at … Continue reading
I don’t know what happened. Alex was so bad that he now has several new (and rather awful) bruises from biting his arms and hands. He bit himself, then while holding the bite pulled his arm / hand away from … Continue reading
Alex had a horrible visit yesterday evening. We wanted to repeat the Tuesday happiness and get some more pictures and video, but whatever fleeting happiness my little boy enjoyed on Tuesday was completely gone yesterday. We couldn’t even get him … Continue reading
I was very anxious about yesterday’s visit, because Alex had been having such a horrific time lately, but I just thought I should follow up so the many regular readers (all four of you) wouldn’t be left hanging — Alex … Continue reading