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Who is Alex?
Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.Read his overview or in-depth introduction.
Monthly Archives: June 2010
Updates – June 19th
This was a wonderful week. I’m getting more settled into my job, I’ve got my computer set up so I can keep in touch with everybody supporting us, and more importantly, all four visits with Alex went really well. I … Continue reading
Alex updates – June 13th
This week was all over the place. As I mentioned last time, I started my new job and have been able to visit Alex a bit. Unfortunately, his Thursday and Saturday weren’t nearly as good as Tuesday. He was hurting … Continue reading
New job and stuff
Started the new job on Monday, visited Alex Tuesday, and am generally very busy. Not a lot of time to update here or respond to emails. The good news is that Alex has been able to go without wearing his … Continue reading
The big move….
A lot of attention is hitting the blog all of a sudden – looks like somebody (maybe multiple people?) is helping us publicize our story, which is great! I love all the support we’re getting, it makes it a lot … Continue reading
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