Well, after a lot of fighting we got Alex to the Kennedy Krieger Institute. It was a ridiculous battle, and shame on Providence for trying to deny somebody as obviously in need as Alex. Their initial denial was flimsy at best, claiming various administrative errors. We appealed and they denied with much more coherent (but still ridiculous) reasons. Continue reading
I’d like to say first and foremost that we wanted to thank all of our supporters. in the past few months, even with very few updates from us, we have received tons of emails and Facebook messages supporting us and our cause. The responses and emails about my recent blog post, “I think I’m done”, have been extraordinary. To answer the most common concern I’ve seen: no, we’re not giving up on cannabis — we’re just not writing updates as often. Continue reading
After stating the blog would go on, I haven’t touched it.
Partly I don’t feel like putting up more because I’m satisfied that Alex’s story was able to really be told. Partly I feel like the updates aren’t helpful since it’s just repetitive information – Alex is happy, now he’s unhappy, now he’s happy, and so forth.
But honestly, a lot of why I’m done has to do with Alex’s situation just not being one that makes for good updates. Continue reading
First, since surgery, Alex has been doing really well. This should not be the case from everything we’ve learned about the SEGA (the growth in his brain they removed), but we’re not going to complain. We’ve been told by doctors that the surgery wouldn’t likely help him long-term, and based on when the SEGA first showed up and when Alex’s behaviors hit, it definitely seems unlikely the SEGA was to blame for his self-injury, but who knows?
Of course, he’s still having to be wrapped up all the time. The video I posted recently still shows a more easygoing version of Alex than what we’re seeing lately. He’s super happy, but seems to need his security items a lot more. Continue reading
Posted in Alex
Tagged Alex, media, update, visit
The federal government recently refused to reclassify cannabis, stating it still hasn’t been proven to have medical value. Of course, it’s a tough thing to prove when the government allows very limited research on the subject. And to be honest, even if they do reclassify it, we don’t much care anymore. We want full legalization, even though neither Alex’s mother nor myself use cannabis. Why? Continue reading
We visited Alex on the way back from the grower, and he was doing pretty well, though he needs to be wrapped up, and is definitely wanting to do more running than he’s allowed to. The surgery definitely hasn’t slowed the kid down any! Continue reading
It’s been suggested we keep the blog going as well as the facebook page, since a lot of people won’t follow the Facebook stuff, so I’m going to try and put up the longer updates and such here. Continue reading
I’m going to abuse our free publicity tonight (Alex’s story airs at 10pm on Fox 12 in Portland!!): anybody out there have access to Harlequin clones? Or anything similarly CBD-rich? We’re looking to get a new strain to try out for Alex that will allow us to stop mixing our current high-THC strain with the Dixie Botanicals Dew Drops Hemp Oil Supplement. The Dixie stuff seems pretty decent, but (a) it’s too expensive, and (b) I’d rather get exactly what Alex needs from one source.
Also, this site is going to stay up, but I might slowly migrate to using the Facebook version of Alex’s story for all messages. I think Facebook is a lot easier for quick updates, but it’s not nearly as handy for bigger messages or general information pages.
The interview is definitely going to air. We’ve even been contacted by somebody who saw a trailer for the interview. It was suggested that we put Alex’s story up on Facebook since it’s more visible there (and easier for us to maintain, less likely to get overwhelmed by traffic surges, etc). We’ve only started today, but Alex’s story is now an official Facebook page. Continue reading
Posted in Alex
Tagged Alex, media, update
We just finished a brief interview with a local TV station. It was grueling, but mostly because I hate remembering the day we had to tear our family apart. And, of course, that pain is what makes our story so important, so there’s no reason the reporter wouldn’t want to talk about it. Continue reading
Posted in Alex
Tagged Alex, cannabis, media